Research that looks like you
Studies run on data from real patients with real care pathways. What you contribute makes results more useful for others with the same condition or life situation.
For you as a participant.
Your medical record can become knowledge - if you say yes.
When you say yes to letting your medical record contribute to a study, you help research that looks like you. You decide what may be used, and you can withdraw your yes whenever you want.
How it works
What happens - if you say yes?
Four steps. That is the whole thing.
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01
You get the invitation
Your clinician or People's Wallet sends you a message: a study is looking for participants like you.
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02
You read what the study wants
In Wallet you see the purpose, which data is used, how long the study runs, and who is behind it.
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03
You say yes, no or adjust
You can accept everything, say no thanks, or opt out of specific data types. Your choice applies to that single study only.
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04
Your data flows in
During the agreed period, your medical notes, lab results or wearable readings contribute to the study - never identifiable to the researcher.
What you get out of it
Three things you take with you.
Not payment. Not gifts. This is the foundation of a consent-borne research environment.
Control via Wallet
You see which studies you take part in, which data is used, and who has seen what. One place. No black box.
Access to results
When a study you have participated in is published, you get a notification. You can read what your contribution led to.
What you are NOT exposed to
Three things you never experience.
These are the boundaries inside the consent. They are fixed.
Your identity is protected
The researcher sees the participant group as a whole - never you as an individual. Name, ID and address never leave your own clinic.
No marketing
No telemarketing. No promotional emails. Your data is never sold - not to pharma, not to insurance, not to anyone.
No extra visits
You do not have to show up anywhere or take samples, unless the study specifically requires it - and you have said yes to that exact thing.
Say no whenever you want.
A consent is not a blanket agreement. It applies to one study at a time, and it can be withdrawn. Five years later too.
- 01Consent is given per study - not once and for all.
- 02You can adjust per data type if you want.
- 03One tap in Wallet, and your data is removed from future analyses the same day.
- 04Applies five years later too - for as long as Wallet exists.
Want to take part?
How to get started.
Most participants are invited via their own clinician or directly via People's Wallet. You do not have to search yourself.
Get access via People's Wallet
Or ask your clinician next time you visit.